Wednesday, October 23, 2024

Cancer Musings (Oncology Appt)

 Today I had an oncology appointment to check my progress on drug X. I just completed my second 21-day cycle of the drug. It's going okay so far. The side effects are manageable and my labs are okay enough to continue on. So, my "prize" is I get to take drug X for another 21-day cycle. 



Greg wasn't able to leave work for today's appointment, so I was on my own. Not only do I enjoy having him with me for a second set of ears and he asks good questions, he's also a much better selfie taker than I am. He was missed in many ways.

Saturday, October 5, 2024

Cancer Musings (Emergency Room Visit)

Today I made a trip to the emergency room at our local hospital. I was having some chest pains, which is a possible side effect of the most recent chemo drug I'm taking. Rather than spending the day second guessing if I was having a heart attack, I was persuaded I should go in and get it checked out. When you're going through cancer treatment, there is a tendency to constantly second guess every little thing that happens in your body. Is it a side effect of some treatment (because they all have side effects) or is it something more serious?

Everything checked out fine. No heart attack (likely some radiating pain from a strained muscle in my arm). We were out of there in under 2-1/2 hours, which is pretty good for a trip to the emergency room on a Saturday afternoon. 


This is a picture of the CNA who was on duty this afternoon. He performed the EKG and did the blood draw on me. I couldn't help but take his picture each time he left and walked back into the room (which I think he found a little distracting and slightly odd). He was very good at his job. Usually, it's pretty difficult to do a blood draw on me (hard to find a vein, many attempts are made), but this guy got it on the first try. I'm glad he was on duty today. 
He told me he wasn't on the schedule to work today; he had just picked up a shift. 
This was no accident or coincidence as far as I'm concerned. 
I believe God put him there at just that time. And I'm glad he was there. 

Oh yeah, "this guy" just happens to be my brother. 

Wednesday, October 2, 2024

Cancer Musings (Oncology Appt)

Today was my first follow-up appointment with the oncologist after starting drug X (chemo pill). The side effects have been less on this drug than the infused drugs were, for which I am grateful. I finished my first 21-day cycle and got the go-ahead to start the next one. 

Greg has faithfully attended every oncologist appointment I've had. And by the grace of God, his schedule allowed him to do so. It has been a blessing to have him with me during the appointments, as sometimes my head stops on a particular piece of information and doesn't continue processing the rest of what I'm hearing. Greg picks up the slack for me then and asks questions or retells me what I missed later. I'm so grateful for him. 



Monday, September 30, 2024

Cancer Musings (Swollen Legs & Tears)

I had a Physical Therapy appointment two weeks ago, and I'm finally able to talk about it. Ever since being on Taxol (which ended May 1), my legs have been quite swollen. The oncologist put me on a medication for it, but it was ineffective and brought its own side effects with it, so we discontinued it. I asked for a referral to Physical Therapy instead. I walked out of the physical therapist's office in tears. I wasn't upset by anything the physical therapist said or did, but I was overwhelmed by the magnitude of the treatment course. 

The "prescription" for the swollen legs was to engage in a process called "edema wrapping". This involves wrapping my legs from foot to knee in multiple layers of compression wraps (stretchy Ace bandages) every day and leave them on for 23 hours a day. I get one hour off for good behavior (and to take a shower). The physical therapist trained me how to do this rather technical process myself, so I wouldn't have to go to the office for an appointment to have it done every week. It takes at least 30 minutes to perform this task every day. If I follow the prescribed advice from my oncologist to apply a heavy-duty therapeutic lotion to my feet everyday (to avoid a side effect to my feet caused by the current chemo drug I'm taking) then I end up wrapping my legs twice a day. This news was enough to make a grown woman cry (and it did). The time consuming nature of cancer treatment (and all the side effects that accompany it) is overwhelming to the say the least. 

The idea behind this treatment is to reduce the swelling in my legs enough to reward me by ordering me a specialized (and spendy) pair of compression stockings that I can wear everyday instead of the bandages. 

Once I stopped crying, I determined in my heart to be a big girl about it and perform the treatment as prescribed. That appointment was two weeks ago, and the good news is that the swelling is reducing in my legs. I still have another week or more to go in the treatment, and by the grace of God my technique is improving and I'm shaving a few minutes off of the process each time. God is good, and He is faithful. He's been with me every step of this journey, even in the tears. Especially in the tears. 

Wednesday, September 18, 2024

Cancer Musings (The New Drug)

Last week I started the new chemo drug. We'll call it drug X. This drug is being used as a maintenance therapy. Triple Negative Breast Cancer is somewhat rare (10-15% of all breast cancers diagnosed are triple negative/non-estrogen dependent). It is aggressive (it grows fast). And it has a high return rate within 5 years. The lower the stage the better the chance of it not returning sooner. Mine was stage 1. 

There has been success in recent studies for women who have done this maintenance drug after traditional chemo, surgery, and radiation. A high percentage of them are still alive after 5 years. Encouraging and sobering at the same time. But, really, nothing has changed. My days have always been numbered. God has known the exact number of my days on this earth before I was even born. I will get no more than that and no less. And within that prescribed number of days is a story. I'm living out that story right now. Cancer is part of mine. It is one of the things God will use to bring Himself glory and allow me to see His goodness in all things. 

The way this chemo pill works is that I take it two times a day (3 pills/2x a day) for a cycle and then return to see the oncologist to check in and have labs drawn and get the okay to start another cycle. A "cycle" is 21 days. Within that 21 days, I take this chemo pill twice a day for 14 days and then I stop taking it for 7 days. Today is day 8 in the first cycle, and so far so good. It's not without its side effects (nausea and general chemo weirdness for lack of a better explanation), but it is tolerable so far. The goal with this treatment is to complete 8 cycles (about 6 months) if I tolerate it. 

And onward we go. 

Wednesday, September 4, 2024

Cancer Musings (Birthday)

Today is my birthday. I turned 55 years old today. I'm grateful for another year and the opportunity to glorify God on this earth. I've felt every moment of this year, and it's made me appreciate things more. 

No big outward celebration this year, but it was very celebratory nonetheless. I spent the day at work and enjoyed several coworkers stopping by to enjoy a birthday cookie with me. My coworkers have been so kind to me throughout this year, and God has used them to encourage me and keep me going throughout the whole year. 

For dinner this evening, Greg (and Papa-Larry) took me out to a restaurant. They were a bit surprised by my choice. Buffalo Wild Wings. I wasn't looking for expensive and I wasn't looking for fancy, but I was looking for chocolate cake. It is a little known fact (until today) that one of the best pieces of chocolate cake you'll find in a restaurant is at Buffalo Wild Wings. True story. Usually, Greg and I split a piece, but since today we were splitting it amongst three people, I ordered two pieces (happy birthday to me). Through most of this past year, I didn't eat chocolate because I couldn't stand the taste of it (an experience that had been completely foreign to me up to this point in life). The joy of tasting chocolate has returned for the moment, and I knew just where and how to celebrate that little victory. I had my piece of chocolate cake, and it did not disappoint. 


 I will be starting the new chemo drug (an oral pill) next week. My only request concerning this next treatment was to start it after September 4. I have felt physically well this past month, and I wanted to enjoy that feeling (and be able to taste cake) on my birthday. God allowed me that joy. He is so good, and He is in this story.





Wednesday, August 21, 2024

Cancer Musings (Oncology Appointment/Update)

Today I had an appointment with my oncologist to discuss the next chemo treatment. I was diagnosed with breast cancer back in early November, and in the past nine months I've had two courses of IV chemo (Adriamycin & Taxol), surgery, and radiation treatment. The treatments were hard on me, and the side effects were rough. They exhausted me and weakened me. At moments, they discouraged me. But far more than any other thing, I have been encouraged by the goodness of God and and the kindness of people through this entire journey. I can say with Nehemiah of the Bible, "the joy of the Lord has been my strength" (Nehemiah 8:10). 

In the past month, I have felt very good. My appetite and taste of food has mostly returned, and my energy levels rival those of pre-November days. I am so grateful to God for the gift of feeling well at the present time. 

Today's appointment with the oncologist went well, and I will start an oral chemo drug in mid-September. The purpose of the drug is to lessen the risk of recurrence. It has been proven to be effective in women with triple-negative breast cancer. I will be on it for six months. I'm not looking forward to the side effects that inevitably come with any chemo treatment, but they are reported to be somewhat milder with this treatment, and I should be able to keep the hair this time around. 

As is our custom, Greg and I made sure we took a picture together at this appointment, and you'll find that below. 


P.S. The hair is coming back. It's short, but it's there. 

 Today I had an oncology appointment to check my progress on drug X. I just completed my second 21-day cycle of the drug. It's going oka...